“And he was always willing to lend his shoulder.” “As a community with a life-threatening, rare disease, we face a lot of losses, and he was always there for people,” she continued. “Bob was so generous, and when someone gives so freely of their time and their talent and their compassion and goodwill, it sets the tone, and others who have that inclination are really ready to join in.” “We’re a very small organization, so individuals can have a huge impact, and Bob was certainly one of those people,” Wright said. Related: Lori Loughlin Issues A Rare Public Statement About Bob Saget’s Death ‘Bob Was So Generous’
He also played a huge role in recruiting donors and researchers to join their cause. described Saget as a “rock” who went above and beyond to support board members and staffers at the foundation. “It did motivate him a lot to try to bring awareness to the disease and to help drive research and awareness to make sure that that didn’t happen again,” she added.Ī post shared by Scleroderma Research Fndn. It was hard for her to get diagnosed, which was much more common in those days, in the 90s, and there were fewer options and there was less understanding,” Wright told “ Good Morning America.” “Bob felt that his sister did not have a good medical experience. Saget was also a member of the SRF board. She lost her life to scleroderma, which led to Saget spending the rest of his life fighting to find a cure for it according to Deann Wright, a board member of the Scleroderma Research Foundation (SRF). 5Q8RdLHMz4īob Saget died on January 9, which would have been the 75th birthday of his sister Gay, who passed away in 1994 at the age of 47. For years, he had a comedy show to raise funds for scleroderma, a horrible disease his sister passed away from, far too young. Now, it’s been revealed that he died on the birthday of his late sister, who died young from a rare disease that he spent years championing research for.įunny, nice, great father & friend. The world is still in shock after “Full House” actor Bob Saget was found dead on Sunday in a Florida hotel room at the age of 65.